Meet Julian: A Texas Children’s Hospital Champion
Julian’s parents started to notice developmental delays during his first year of life. They decided to pay out of pocket for therapies and providers in Puerto Rico but were assured he would grow out of his challenges.
is participating in Family Advocacy Day 2023.
Eventually, they decided to move from Puerto Rico to Texas and seek care from Texas Children’s Hospital. Julian was diagnosed with MECP2 duplication syndrome and nonverbal autism.
“The lack of knowledge and empathy from where we previously lived was what drove us to make this huge change for the better,” says Cynthia, Julian's mother.
Julian’s parents immediately accepted his diagnosis. “We were always told he is blessed, he has us as parents and the true blessing in this world is being able to call him our son,” says Cynthia. “Julian is such a warm, kind, perfect human being.”
Julian was diagnosed with moderate obstructive sleep apnea which was affecting his breathing and his overall energy and mood during the day. He had a tonsillectomy and adenoidectomy surgery in the summer of 2022 and has improved greatly in his overall energy levels and moods.
Today, Julian is healthy and doing well. He regularly attends speech, physical and occupational therapies. His favorite activity is watching movies and eating.
Family Advocacy Day
Elevating patient stories and educating lawmakers remains critical to increase awareness about the essential care provided by children's hospitals.