Children with Special Health Care Needs Blueprint RFI Comment Letter

Children with Special Health Care Needs Blueprint RFI Comment Letter

We submitted comments on HRSA's Blueprint RFI for children and youth with special health care needs.

Earlier this year, the Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau sought input on their "A Blueprint for Change: Guiding Principles for Advancing the System of Services for Children and Youth with Special Health Care Needs and Families" with the aim of creating an effective system of care for children and youth with special health care needs (CYSHCNs). In our response to HRSA, we highlight the role children's hospitals and Medicaid play in the care of CYSHCNs.

Specifically, we recommend that the blueprint:

  • Have a greater focus on behavioral health and national data, particularly for CYSHCNs enrolled in Medicaid.
  • Acknowledge the regional nature of pediatric care and the importance of improving access to technology supporting provider communication, such as telehealth.

We also stress the need to include children's hospitals and pediatric providers as necessary stakeholders in the implementation of the goals and objectives of the Blueprint.


Contact Us

For more information, connect with us.

(202) 753-5333

Related Content

‘The Most Amazing Experience’: Team IMPACT Improves Emotional Resilience for Pediatric Patients

The non-profit program partners with collegiate athletic teams to provide a unique system of social support for children with serious illnesses and disability.

June 19, 2024

A Better Tomorrow for Children's Mental Health Depends on Today’s Actions

Addressing the youth mental health crisis has been a long-standing priority for CHA and children's hospitals across the nation.

May 31, 2024

Advancing Behavioral Health Care

Learn how children’s hospitals and health systems are addressing the national emergency in child and adolescent mental health.

May 24, 2024