Meet Milo: A Boston Children’s Hospital Champion

Meet Milo: A Boston Children’s Hospital Champion

During Family Advocacy Day, Milo and his family will discuss his health journey, Boston Children’s Hospital's role in providing him with necessary care, and why we must invest in the future of patients like Milo.

In the fall of 2021, Milo began displaying symptoms. After limited support from his pediatrician and two nearby hospitals, Milo and his parents were introduced to Boston Children’s Hospital in December of 2022. He was diagnosed with tethered cord syndrome.

Milo, a Boston Children's Hospital champion,
is participating in Family Advocacy Day 2023.

“Following the diagnosis, we felt relief, hope and had an actionable plan that we could embrace,” says Caitlin, Milo’s mother. “He is a resilient little boy.”

At the onset of his symptoms Milo’s parents and providers questioned whether their presence was a result of anxiety and required behavioral intervention, in part due to the impacts of the COVID-19 pandemic. “This often distracted our own, and others, support of medical interventions to resolve his debilitating symptoms,” says Caitlin.

After finding answers at Boston Children’s, the chief of neurosurgery performed tethered cord surgery in March 2023. Milo is recovering well and is back to his normal physical activities after receiving care from providers across the organization.

“The doctors at Boston Children’s were able to give us answers after a long time of searching,” says Caitlin. “Their care and support has changed my family’s life and brought hope for my future.”

Milo will continue to be followed by his team at Boston Children’s. In his free time, he’s enjoying getting back to bike riding and playing with his Pokémon cards.

Family Advocacy Day

Elevating patient stories and educating lawmakers remains critical to increase awareness about the essential care provided by children's hospitals.