• Toolkit
  • February 22, 2019

Everything You Need to Know About the ACE Kids Act


Talking Points

  • In early February, the bipartisan Advancing Care for Exceptional (ACE) Kids Act of 2019 (S. 317/H.R. 1226) was introduced in the U.S. Senate and House by lead co-sponsors Sens. Charles Grassley, R-Iowa, and Michael Bennet, D-Colo., and Reps. Castor, D-Fla., Bilirakis, R-Fla., Eshoo, D-Calif., and Herrera Beutler, R-Wash. This legislation follows the ACE Kids Act of 2017, which passed the House last year by an overwhelming majority and held strong bipartisan support in the Senate.
  • Medicaid covers over 37 million children, and a small percentage of these kids have complex medical conditions requiring ongoing and specialized care; their care accounts for a drastically disproportionate percentage of Medicaid spending on children. The ACE Kids Act addresses existing challenges — identified by families and physicians — facing these children, including the provision and coordination of care across multiple providers and services, and easing access to out-of-state care.
  • The ACE Kids Act would expand access to patient-centered, pediatric-focused coordinated care models tailored for children with medical complexity.
  • This concept works. Results have been demonstrated through the Center for Medicare and Medicaid Innovation (CMMI). The ACE Kids method reduced costs and improved quality based on the documented care of thousands of children. CMMI's Coordinating All Resources Effectively (CARE) award — involving 10 children's hospitals with eight different state Medicaid programs, including D.C. — reduced emergency department visits by 26 percent and reduced inpatient days by 32 percent. In the first full year of operations coordinating care for 8,000 children, CARE ultimately reduced overall costs by 2.6 percent while improving patient experience. The ACE Kids Act would enable these innovations to spread nationally.
  • ACE Kids would be optional for states, providers and families. Further, it would work within the existing structure of a state's Medicaid program, including those states with Medicaid managed care. The bill would allow for the creation of enhanced pediatric health homes and provide incentives for states to participate.
  • The bill creates a national framework to improve data collection and quality of care. It will also allow for better coordination for out-of-state care, and spur innovation and the sharing of best practices between states.

The ACE Kids Act would improve Medicaid for the sickest children and reduce program spending.

We ask lawmakers to co-sponsor and pass the ACE Kids Act this year.