Children With Medical Complexity

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Photo: John O'Boyle, Children's Specialized Hospital, New Brunswick, New Jersey

On Feb. 14, the bipartisan Advancing Care for Exceptional (ACE) Kids Act of 2019 (H.R. 1226) was introduced in the U.S. House by lead co-sponsors Reps. Kathy Castor, D-Fla., Gus Bilirakis, R-Fla., Anna Eshoo, D-Calif., and Jaime Herrera Beutler, R-Wash. The Senate version (S. 317) was introduced earlier in February by lead co-sponsors Sens. Charles Grassley, R-Iowa, and Michael Bennet, D-Colo. The ACE Kids Act supports better coordination of care for children with complex medical conditions in Medicaid, reducing the burden on families.

Resources

Press Release
U.S. House to Take Action on Bipartisan ACE Kids Act
March 22, 2019

The bipartisan ACE Kids Act was included in a package of Medicaid-related bills, H.R. 1839, introduced in the U.S. House.

Toolkit
Everything You Need to Know About the ACE Kids Act
February 22, 2019

The ACE Kids Act (S. 317/H.R. 1226) will improve care for children with medical complexity in Medicaid, while reducing program spending.

Analysis or Summary
ACE Kids Act of 2019 (S. 317/H.R. 1226) - Summary
February 21, 2019

The ACE Kids Act of 2019 (S. 317/H.R. 1226) is designed to improve care for children with medically complex conditions in Medicaid.

Talking Points
Pass the ACE Kids Act (S. 317/H.R. 1226)
February 21, 2019

Ask your members of Congress to pass the ACE Kids Act of 2019 (S. 317/H.R. 1226).

Press Release
Children's Hospitals Applaud U.S. House Introduction of Bipartisan ACE Kids Act of 2019
February 21, 2019

The ACE Kids Act of 2019 (H.R. 1226) is introduced in the House by Reps. Castor, Bilirakis, Eshoo and Herrera Beutler.

Article
U.S. Senate Introduces Bill That Would Help Improve Care for Children with Medical Complexity
February 5, 2019

The 116th Congress introduced the bipartisan ACE Kids Act.

Press Release
Children's Hospitals Applaud U.S. Senate Introduction of Bipartisan ACE Kids Act of 2019
February 4, 2019

The ACE Kids Act of 2019 (S. 317) is reintroduced by Sens. Grassley and Bennet.

Article
A Family Faces the Reality of Leaving the Children's Hospital Environment
February 1, 2019

As Christian Provenzano, who has cerebral palsy, moves into adulthood, his family prepares for a new health care reality.

Article
Partnering With Patient Families to Better Care for Children With Medical Complexity
January 29, 2019

Family members are crucial—although often underutilized—partners in their child's health care. Here's how hospitals are empowering them as partners in their child's care.

Analysis or Summary
ACE Kids Act of 2017 - High-level summary (H.R. 7217)
December 14, 2018

CHA summarizes the House-passed version of the ACE Kids Act of 2017 in the IMPROVE Act (H.R. 7217).

Article
U.S. House Passes Bill That Would Help Improve Care for Children With Medical Complexity
December 12, 2018

The bipartisan ACE Kids Act now moves to the Senate for consideration.

Press Release
Children's Hospitals Applaud U.S. House Passage of ACE Kids Act
December 11, 2018

The U.S. House passed the bipartisan Advancing Care for Exceptional Kids Act of 2017 (ACE Kids Act) as part of H.R. 7217.

Article
3 Ways Hospitals are Transforming the Delivery System for Children with Complex Medical Conditions
December 11, 2018

Children's hospitals share their findings from the CARE Award related to improving care delivery systems with better care coordination.

Article
Military-Connected Kids and Medicaid: Ensuring Military Readiness
November 21, 2018

New report shows children of active duty military members and veterans rely on Medicaid.

Press Release
New Report Highlights Why Medicaid is Critical to America's Military Readiness
November 15, 2018

A coalition of military family and health advocacy groups released a new report highlighting the crucial role Medicaid plays for millions of military children.

Article
What This Mom Learned About Sepsis After Her Son Survived It
October 23, 2018

Nikki Schueller learned a lot about sepsis after her son’s six battles with it. Here’s what she wants all health care providers to know.

Article
How Hospitals Create Partnerships with the Families of Children with Complex Medical Conditions
October 23, 2018

How children's hospitals are improving care for children with medical complexity and reducing health care spending.

Article
Stabilizing the Cost of Care for Children with Medical Complexity
October 19, 2018

Children's hospitals share insights on how focusing at the local level helped build relationships with payers.

Letter or Testimony
Accelerating Kids Access to Care Act CHA Support Letter
September 19, 2018

CHA sent a letter of support for the Accelerating Kids' Access to Care Act (S. 2415/H.R. 6524), which will create a national Medicaid enrollment pathway to help alleviate the administrative burden on providers and ensure that children are able to receive out-of-state care.

Press Release
Children's Hospitals Applaud House Energy and Commerce Advancement of ACE Kids Act
September 13, 2018

The U.S. House Energy and Commerce Committee voted to advance the bipartisan Advancing Care for Exceptional Kids Act of 2017 (ACE Kids Act, H.R. 3325), co-sponsored by Reps. Barton, R-Texas, and Castor, D-Fla., to the House floor for consideration.

Press Release
Children's Hospitals Applaud House Subcommittee Advancement of ACE Kids Act
September 7, 2018

The U.S. House Energy and Commerce Health Subcommittee voted to advance the bipartisan Advancing Care for Exceptional Kids Act of 2017 (ACE Kids Act, H.R. 3325).

Press Release
Lawmakers Focus on Helping Children with Bipartisan ACE Kids Act
September 5, 2018

The House Energy and Commerce Subcommittee on Health held a hearing today to discuss the bipartisan ACE Kids Act (H.R. 3325).

Article
Looking Through 'Fresh Eyes' Could Be the Best Way to Solve Complex Medical Cases
July 30, 2018

Newman: Solving a seemingly intractable case requires questioning the original diagnosis and all subsequent diagnoses.

Article
Commentary: Kids are at the Center of Everything Children's Hospitals Do
July 30, 2018

Advocating for children is part of our roles as leaders in children's hospitals, says Rick W. Merrill, CEO of Cook Children's Health Care System.

Article
Pediatric Long-term Care Program Prepares Patients and Families for Home
July 19, 2018

Children's hospital facility addresses specialized needs of infants and children who require extended medical care and rehabilitation.

Contacts

CARE Award

CARE Award Delivery System Transformation

An ambitious, national project is underway to test new payment and delivery models for children with medical complexity. 

Presentations

Annual Leadership Conference

Leaders share the latest insights from the CARE award study to improve outcomes and reduce costs for children with medical complexity.

Upcoming Events

Policy Update Calls

Members receive the latest updates and suggest ways to best influence policy issues that impact children's health and children's hospitals in a weekly conference call.