Children With Medical Complexity

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Photo: Gara Dyson, St. Louis Children’s Hospital

On April 18, the ACE Kids Act of 2019 was signed into law as part of a larger package (H.R. 1839).

COVID-19 Update: our resource hub for children’s hospitals tracks policy-related resources helpful to your work during the COVID-19 crisis.


Parents’ Perspective: The Need for Emotional Support
December 13, 2021

Emotional health is an essential component of child health, especially for families of pediatric patients with chronic conditions.

Partnership with Children's Hospital Helps Keep School in Session During the Pandemic
May 19, 2021

Decades-long history of collaboration between children’s hospital and its on-site public school paves the way for school year of in-person learning amid pandemic.

Letter or Testimony
Children and Youth with Special Health Care Needs - Blueprint RFI Comment Letter
November 30, 2020

We submitted comments on HRSA's Blueprint RFI for children and youth with special health care needs.

Letter or Testimony
ACE Kids Act Federal Policy Recommendations
November 11, 2020

We have been working to inform CMS guidance on implementation of the ACE Kids Act.

Press Release
Children's Hospitals Applaud Legislation to Improve Children's Health Care
September 25, 2020

Children's hospitals applaud the introduction of the Accelerating Kids' Access to Care Act in the Senate.

What This Mom Learned About Sepsis After Her Son Survived It
April 16, 2020

Nikki Schueller learned a lot about sepsis after her son’s six battles with it. Here’s what she wants all health care providers to know.

Letter or Testimony
CMS RFI on Coordinating Care from Out-of-State Providers for Children with Medically Complex Conditions
March 25, 2020

We submitted a response to the RFI on coordinating care from out-of-state providers for children with medically complex conditions.

Inform the Community About Your Hospital's Response to COVID-19
March 11, 2020

Whether families have a sick child or are seeking routine care, many look for guidance on COVID-19 safety practices.

Everything You Need to Know About the ACE Kids Act
December 10, 2019

The ACE Kids Act will enable better care coordination for children and decrease Medicaid spending.

ACE Kids Act: The policy win of the decade
July 29, 2019

The ACE Kids Act will improve care for the sickest children in the nation.

Assistive Technology Helps Kids Connect with the World
July 29, 2019

New technology can help patients find their voice.

ACE Kids Will Improve Care Coordination for the Sickest Patients
July 29, 2019

The legislation allows for the national collection of data, which will provide much needed evidence to improve care and outcomes.

Press Release
Children’s Hospital Association’s Speak Now for Kids Family Advocacy Day
June 25, 2019

The ACE Kids Act of 2019 (H.R. 1226) is introduced in the House by Reps. Castor, Bilirakis, Eshoo and Herrera Beutler.

Press Release
Appropriations Committee Takes Step to Invest in Kids’ Health
May 8, 2019

Children's hospitals thank the U.S. House Appropriations Committee for proposing $350 million for CHGME in FY 2020.

How 10 Hospitals Redefined Care for Medically Complex Children
May 7, 2019

Using new change concepts to improve care, avoid unnecessary visits and reduce spend, 10 hospitals transformed how they deliver care for children with medical complexity.

ACE Kids Act Implementation and What it Means for Children's Hospitals
May 1, 2019

With the passage of the ACE Kids Act as part of H.R. 1839, focus shifts to implementation and the many questions around next steps—from policy, operating and care delivery perspectives.

Mom Becomes a Pediatric Nurse in the Same Hospital that Cared for Her Son
April 26, 2019

Before she started working at Children's Medical Center Dallas as a nurse in 2017, Kim Arnold spent eight and a half years at the hospital as a patient parent with her children.

Press Release
President Trump Enacts the ACE Kids Act
April 18, 2019

President Trump signed the bipartisan ACE Kids Act into law, which will improve care for children with medically complex conditions who rely on Medicaid for health care coverage.

ACE Kids Act Now Law
April 18, 2019

President Trump signs H.R. 1839, which includes the ACE Kids Act to improve care for some of the nation’s sickest kids.

Analysis or Summary
ACE Kids Act (as included in H.R. 1839) - Summary
April 5, 2019

On April 2, the ACE Kids Act passed the Senate as part of a package of Medicaid bills, the Medicaid Services Investment and Accountability Act of 2019 (H.R. 1839).

U.S. Congress Passes ACE Kids Act
April 3, 2019

The bipartisan bill now moves to the president for signature.

Press Release
Congress Passes the ACE Kids Act — Improving Care for Children
April 2, 2019

Congress passed the bipartisan ACE Kids Act, which will improve care for children with medically complex conditions who rely on Medicaid for health care coverage.

U.S. House Passes ACE Kids Act
March 27, 2019

The bipartisan bill now moves to the Senate for consideration.

Press Release
Children's Hospitals Applaud U.S. House Passage of ACE Kids Act
March 25, 2019

The U.S. House took an important step for children by passing the bipartisan ACE Kids Act as part of a larger package of Medicaid-related bills (H.R. 1839).

Press Release
U.S. House to Take Action on Bipartisan ACE Kids Act
March 22, 2019

The bipartisan ACE Kids Act was included in a package of Medicaid-related bills, H.R. 1839, introduced in the U.S. House.


CARE Award


Transforming care delivery and payment for children with medical complexity

Policy Update Calls

Members receive the latest updates and suggest ways to best influence policy issues that impact children's health and children's hospitals in a weekly conference call.