Children With Medical Complexity

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Photo: John O'Boyle, Children's Specialized Hospital, New Brunswick, New Jersey

The ACE Kids Act of 2017 (S. 428/ H.R. 3325) was introduced in the Senate in February by lead co-sponsors Sens. Charles Grassley, R-Iowa, and Michael Bennet, D-Colo, and in the House in July by lead co-sponsors Reps. Joe Barton, R-Texas, and Kathy Castor, D-Fla.

Kids like Mackenna will be helped by the ACE Kids Act. Learn more about her story.

This legislation follows the ACE Kids Act of 2015, which achieved strong bipartisan support in both the House and Senate. Currently, the House bill has 134 co-sponsors, and the Senate bill is supported by 40 co-sponsors. The House Energy and Commerce Committee advanced ACE Kids to the full House on Sept. 13.

View a cost analysis of similar 2015 legislation by an independent non-profit.

View organizations that support the ACE Kids Act.


Resources

Talking Points
Prioritize Kids' Health: Pass the ACE Kids Act (S. 428/H.R. 3325)
December 4, 2018

Ask your members of Congress to pass the ACE Kids Act of 2017 (S. 428/H.R. 3325).

Article
Military-Connected Kids and Medicaid: Ensuring Military Readiness
November 21, 2018

New report shows children of active duty military members and veterans rely on Medicaid.

Press Release
New Report Highlights Why Medicaid is Critical to America's Military Readiness
November 15, 2018

A coalition of military family and health advocacy groups released a new report highlighting the crucial role Medicaid plays for millions of military ...

Article
How Hospitals Create Partnerships with the Families of Children with Complex Medical Conditions
October 23, 2018

How children's hospitals are improving care for children with medical complexity and reducing health care spending.

Article
What This Mom Learned About Sepsis After Her Son Survived It
October 23, 2018

Nikki Schueller learned a lot about sepsis after her son’s six battles with it. Here’s what she wants all health care providers to know.

Article
Stabilizing the Cost of Care for Children with Medical Complexity
October 19, 2018

Children's hospitals share insights on how focusing at the local level helped build relationships with payers.

Analysis or Summary
ACE Kids Act: Provision Changes to Date
October 11, 2018

The ACE Kids Act of 2017 would improve the delivery of care for children with medical complexity in Medicaid.

Toolkit
Government Relations Toolkit
October 9, 2018

CHA members can view and print the latest materials for outreach to federal and state lawmakers.

Letter or Testimony
Accelerating Kids Access to Care Act CHA Support Letter
September 19, 2018

CHA sent a letter of support for the Accelerating Kids' Access to Care Act (S. 2415/H.R. 6524), which will create a national Medicaid enrollment ...

Analysis or Summary
ACE Kids Act of 2017 - Senate and House High-level Summaries (S. 428/H.R. 3325)
September 19, 2018

CHA summarizes the major similarities and differences between the Senate and House versions of the ACE Kids Act of 2017.

Analysis or Summary
ACE Kids Act of 2017 - Section-by-Section Summaries of S. 428 and H.R. 3325
September 19, 2018

CHA provides an overview of the content within each section of S. 428 and H.R. 3325.

Press Release
Children's Hospitals Applaud House Energy and Commerce Advancement of ACE Kids Act
September 13, 2018

The U.S. House Energy and Commerce Committee voted to advance the bipartisan Advancing Care for Exceptional Kids Act of 2017 (ACE Kids Act, H.R. ...

Toolkit
Everything You Need to Know About the ACE Kids Act
September 7, 2018

The ACE Kids Act (S. 428/H.R. 3325) will improve care for children with medical complexity in Medicaid, while reducing program spending.

Press Release
Children's Hospitals Applaud House Subcommittee Advancement of ACE Kids Act
September 7, 2018

The U.S. House Energy and Commerce Health Subcommittee voted to advance the bipartisan Advancing Care for Exceptional Kids Act of 2017 (ACE Kids Act, ...

Press Release
Lawmakers Focus on Helping Children with Bipartisan ACE Kids Act
September 5, 2018

The House Energy and Commerce Subcommittee on Health held a hearing today to discuss the bipartisan ACE Kids Act (H.R. 3325).

Article
Commentary: Kids are at the Center of Everything Children's Hospitals Do
July 30, 2018

Advocating for children is part of our roles as leaders in children's hospitals, says Rick W. Merrill, CEO of Cook Children's Health Care System.

Article
Looking Through 'Fresh Eyes' Could Be the Best Way to Solve Complex Medical Cases
July 30, 2018

Newman: Solving a seemingly intractable case requires questioning the original diagnosis and all subsequent diagnoses.

Article
Pediatric Long-term Care Program Prepares Patients and Families for Home
July 19, 2018

Children's hospital facility addresses specialized needs of infants and children who require extended medical care and rehabilitation.

Report
Implications of adult network adequacy standards on children’s access to pediatric specialty care
July 16, 2018

CHA is examining the distribution of pediatric health care services, care delivery, and pediatric care utilization to help inform policy decisions ...

Press Release
Children's Hospitals' Patient Families to Congress: Prioritize Children's Health and Pass Bipartisan Solutions for Kids
June 19, 2018

Child patients and their families will join children's hospitals from across the country in Washington, D.C., for Speak Now for Kids Family Advocacy ...

Talking Points
Prioritize Kids' Health: Safeguard Medicaid
June 15, 2018

Congress must safeguard Medicaid for the children who depend on it to lead healthy, productive lives.

Article
A Child's Special Talent Overshadows a Complex Medical Condition
April 27, 2018

Bridget Benson has adjusted to life with CHARGE syndrome, a genetic condition that occurs in about one in every 10,000 births.

Article
Our First Priority is Providing the Best Care to Kids
April 24, 2018

We should raise our voices together to help confront the issues facing kids.

Talking Points
Summary of Accelerating Kids' Access to Care Act (S. 2415)
April 20, 2018

Summary of the Accelerating Kids' Access to Care Act (S. 2415) legislation, sponsored by Sen. Chuck Grassley, R- Iowa, and Sen. Michael Bennet, ...

Article
Caring for Children with Medical Complexity with Help from Parents, Peer Institutions
November 8, 2017

Children's National's Complex Care Program is an established service line and medical home to more than 2,000 medically complex patients.

Contacts

CARE Award

CARE Award Delivery System Transformation

An ambitious, national project is underway to test new payment and delivery models for children with medical complexity. 

Toolkit

The Capitol building.

Government Relations Toolkit
CHA members can view and print the latest materials for outreach to federal and state lawmakers.

Presentations

Annual Leadership Conference

Leaders share the latest insights from the CARE award study to improve outcomes and reduce costs for children with medical complexity.

Policy Update Calls

Members receive the latest updates and suggest ways to best influence policy issues that impact children's health and children's hospitals in a weekly conference call.