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Children With Medical Complexity

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Photo: Gara Dyson, St. Louis Children’s Hospital

Understanding Medical Complexity

On April 18, the ACE Kids Act of 2019 was signed into law as part of a larger package (H.R. 1839).


COVID-19 Update: our resource hub for children’s hospitals tracks policy-related resources helpful to your work during the COVID-19 crisis.


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Letter or Testimony
Recommendation on National Approach to Identifying ACE Kids Eligible Children
July 7, 2020

We have been working to inform CMS guidance on implementation of the ACE Kids Act.

Article
What This Mom Learned About Sepsis After Her Son Survived It
April 16, 2020

Nikki Schueller learned a lot about sepsis after her son’s six battles with it. Here’s what she wants all health care providers to know.

Letter or Testimony
CMS RFI on Coordinating Care from Out-of-State Providers for Children with Medically Complex Conditions
March 25, 2020

We submitted a response to the RFI on coordinating care from out-of-state providers for children with medically complex conditions.

Article
Inform the Community About Your Hospital's Response to COVID-19
March 11, 2020

Whether families have a sick child or are seeking routine care, many look for guidance on COVID-19 safety practices.

Toolkit
Everything You Need to Know About the ACE Kids Act
December 10, 2019

On April 18, the ACE Kids Act was signed into law as part of a package of Medicaid bills, the Medicaid Services Investment and Accountability Act of 2019 (H.R. 1839).

Article
ACE Kids Act: The policy win of the decade
July 29, 2019

The ACE Kids Act will improve care for the sickest children in the nation.

Article
Assistive Technology Helps Kids Connect with the World
July 29, 2019

New technology can help patients find their voice.

Article
ACE Kids Will Improve Care Coordination for the Sickest Patients
July 29, 2019

The legislation allows for the national collection of data, which will provide much needed evidence to improve care and outcomes.

Press Release
Children’s Hospital Association’s Speak Now for Kids Family Advocacy Day
June 25, 2019

The ACE Kids Act of 2019 (H.R. 1226) is introduced in the House by Reps. Castor, Bilirakis, Eshoo and Herrera Beutler.

Press Release
Appropriations Committee Takes Step to Invest in Kids’ Health
May 8, 2019

Children's hospitals thank the U.S. House Appropriations Committee for proposing $350 million for CHGME in FY 2020.

Article
How 10 Hospitals Redefined Care for Medically Complex Children
May 7, 2019

Using new change concepts to improve care, avoid unnecessary visits and reduce spend, 10 hospitals transformed how they deliver care for children with medical complexity.

Article
ACE Kids Act Implementation and What it Means for Children's Hospitals
May 1, 2019

With the passage of the ACE Kids Act as part of H.R. 1839, focus shifts to implementation and the many questions around next steps—from policy, operating and care delivery perspectives.

Article
Mom Becomes a Pediatric Nurse in the Same Hospital that Cared for Her Son
April 26, 2019

Before she started working at Children's Medical Center Dallas as a nurse in 2017, Kim Arnold spent eight and a half years at the hospital as a patient parent with her children.

Press Release
President Trump Enacts the ACE Kids Act
April 18, 2019

President Trump signed the bipartisan ACE Kids Act into law, which will improve care for children with medically complex conditions who rely on Medicaid for health care coverage.

Article
ACE Kids Act Now Law
April 18, 2019

President Trump signs H.R. 1839, which includes the ACE Kids Act to improve care for some of the nation’s sickest kids.

Analysis or Summary
ACE Kids Act (as included in H.R. 1839) - Summary
April 5, 2019

On April 2, the ACE Kids Act passed the Senate as part of a package of Medicaid bills, the Medicaid Services Investment and Accountability Act of 2019 (H.R. 1839).

Article
U.S. Congress Passes ACE Kids Act
April 3, 2019

The bipartisan bill now moves to the president for signature.

Press Release
Congress Passes the ACE Kids Act — Improving Care for Children
April 2, 2019

Congress passed the bipartisan ACE Kids Act, which will improve care for children with medically complex conditions who rely on Medicaid for health care coverage.

Article
U.S. House Passes ACE Kids Act
March 27, 2019

The bipartisan bill now moves to the Senate for consideration.

Press Release
Children's Hospitals Applaud U.S. House Passage of ACE Kids Act
March 25, 2019

The U.S. House took an important step for children by passing the bipartisan ACE Kids Act as part of a larger package of Medicaid-related bills (H.R. 1839).

Press Release
U.S. House to Take Action on Bipartisan ACE Kids Act
March 22, 2019

The bipartisan ACE Kids Act was included in a package of Medicaid-related bills, H.R. 1839, introduced in the U.S. House.

Analysis or Summary
ACE Kids Act of 2019 (S. 317/H.R. 1226) - Summary
February 21, 2019

The ACE Kids Act of 2019 (S. 317/H.R. 1226) is designed to improve care for children with medically complex conditions in Medicaid.

Press Release
Children's Hospitals Applaud U.S. House Introduction of Bipartisan ACE Kids Act of 2019
February 21, 2019

The ACE Kids Act of 2019 (H.R. 1226) is introduced in the House by Reps. Castor, Bilirakis, Eshoo and Herrera Beutler.

Press Release
Children's Hospitals Applaud U.S. Senate Introduction of Bipartisan ACE Kids Act of 2019
February 4, 2019

The ACE Kids Act of 2019 (S. 317) is reintroduced by Sens. Grassley and Bennet.

Article
A Family Faces the Reality of Leaving the Children's Hospital Environment
February 1, 2019

As Christian Panarese, who has cerebral palsy, moves into adulthood, his family prepares for a new health care reality.

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