• Advocacy Event
  • June 21-22, 2016

2016 Speak Now For Kids Family Advocacy Day

Advocacy Event
June 21-22, 2016

On June 21-22, 2016, 43 child patients representing 35 children's hospitals, and one Great Dane participated in Speak Now for Kids Family Advocacy Day (FAD) to advocate for children’s health and urge their members of Congress to pass the ACE Kids Act. Activities on day one kicked off with local radio interviews in six markets; a sightseeing bus tour of Washington, D.C.; and a fun, interactive briefing to prepare families for their legislative visits the next day. That evening, attendees gathered for a patriotic-themed dinner celebration, including live music from former child patient Shelby Blondell and perennial FAD favorite, Cake for Dinner. 

View pictures of the 2016 Patriotic Family Party

On June 22, hospital staff and families went to Capitol Hill to meet with members of Congress and encourage their support of the ACE Kids Act. The impact of 150 congressional visits resulted in additional cosponsors of the ACE Kids Act and additional momentum for a July 7 hearing on the bill before the Energy and Commerce Subcommittee on Health.

View pictures of the families' visits with Congress

The FAD event and the ACE Kids Act hearing yielded 40 million media impressions, thanks in part to coverage by various outlets, including an article in U.S. News & World Report, an article in McClatchy DC and an Associated Press story published in 13 news outlets. This exposure helped raise awareness of the challenges families with children with medical complexity face and the public policy solutions children’s hospitals are advancing.