Shared Decision Making

Care coordination is essential for children who require care from multiple providers, and family-centered care is a key component of high-quality care coordination. To create shared goals that guide care for the child at any point in the delivery system, families and providers can work together to identify key members of the child’s care team and formulate easy-to-understand treatment plans based on the family's wishes and concerns.

“We’re not pretending that we know what you need.”

Families participating in the CARE Award report that improving care coordination increased the overall quality of family-centered care, including improvement in decision-making interactions with providers. Shared decision making between families and providers led to customized care plans that recognize escalation of conditions and how to respond. These resources make it easier to reach a provider familiar with the child’s care, preventing potential emergency room and hospitalization visits.

Teresa Jurado is a parent mentor at Lucile Packard Children’s Hospital Stanford. She’s also seen the system from a parent’s point of view as mom to Tim, a 27-year-old with complex medical needs, and is a proponent for better parent partnerships. “It's so important that we remember to personalize this for each family and not try to make the families fit within a system that we've created for them. Let them guide you for what works best for them. Work to devise goals that meet the child’s needs.”


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