Children with medical complexity (CMC) and their families experience the entire system of care, which includes a range of medical, educational, legal and advocacy services. Their unique perspectives after navigating this complex array of services on their own can inform care transformation efforts and change practices throughout the health care continuum.
Family-centered care, which prioritizes the needs of the child and family, is foundational to successful care coordination for CMC. The concept ensures that care coordination is a collaborative, partnering activity with families at the lead. This results in an enhanced sense of knowledge about the child, patient goals that derived from family wishes, and shared plans that create consistent, high-quality care across all settings that interact with the family and child.