Family-Driven Care

Children with medical complexity (CMC) and their families experience the entire system of care, which includes a range of medical, educational, legal and advocacy services. Their unique perspectives after navigating this complex array of services on their own can inform care transformation efforts and change practices throughout the health care continuum.

Family-centered care, which prioritizes the needs of the child and family, is foundational to successful care coordination for CMC. The concept ensures that care coordination is a collaborative, partnering activity with families at the lead. This results in an enhanced sense of knowledge about the child, patient goals that derived from family wishes, and shared plans that create consistent, high-quality care across all settings that interact with the family and child.

Establishing Family Partnerships

This short, self-paced course describes why high-level partnerships between families and care providers are so important for children with medical complexity.

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Improvements in Family-Centered Care Scores

Families of CMC participating in the CARE Award report increases in overall quality of family-centered care (FCC), including improvement in the domain of decision-making interactions with providers. The improvement in FCC aligns with key initiatives of the collaborative, including development of shared goals of care.

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Related resources

White Paper

Invoking the Power of Family Partnerships

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White Paper

Reflections on Care Coordination

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White Paper

Access to Care: A Family-Centered Approach

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Prioritizing the Family Experience

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